Cancer · Coronavirus · Covid-19 · Family · Lockdown

Incase you forgot, we are still in the middle of a pandemic

I’ve woke up this morning feeling so angry.

Comments on Facebook about how the virus ‘isn’t real’ or ‘just like the flu’.

People I considered friends, encouraging others to go out to ‘boost their immune system’.

Belittling the hard work that families like mine have been doing to shield for the past 10 weeks.

Using their own delusions of grandeur to make us feel inferior and that our decisions are based off of the Daily Star articles 🤦🏼‍♀️

There no two ways about what I am about to say. Ellis’ prognosis was only 55%.

I will let that sink in.

55% chance that my amazing, funny, caring boy would have of surviving the next 5 years.

I’ll say it louder for those at the back

FIFTY FIVE PERCENT

If your child had that prognosis, wouldn’t you want to keep them safe? Or would you laugh in the face of danger and be careless because you feel like the rules don’t apply to you?

It may not be relatable to you, you may see similar articles and think ‘ah that’s sad, but wouldn’t happen to me’. But it could. And to us it very much has.

Even with all my blogs, I could never make you understand just how hard it is for parents like us, but I will continue give it a good damn go.

No, my son cannot go out to boost his immune system. The aggressive chemo that he has, every single week destroys his. No amount of sun and fresh air can stop that.

No, we haven’t been going to shops. We’ve had days where we’ve had to make up random freezer odd dinners because we are shielding.

When he is home, he is more often that not neutropenic. This means his white blood cells that are used to fight infections, are dangerously low. His body wouldn’t be able to fight a slight cold, let alone covid.

So why would we take that chance?

I was asked today, quite rudely, if we shielded before the pandemic and if we didn’t then why are we now. Because after all, it’s just the flu, right?

I’ll tell you a quick story.

When Ellis was at the beginning of chemo, he was in the house, for about an hour, with someone who was developing chicken pox spots before our eyes. We whisked him quickly out of that situation and followed the protocol we had been given. He was immediately admitted to our local children’s ward where he stayed for 4 nights. He had antibiotics, antibody tests and other blood tests. Chemo was nearly delayed, but they managed to go ahead just in the nick of time. He was in hospital all in all for 8 days that week.

All because he could have been exposed to it.

That was on top of everything else he is fighting, physically and mentally.

Yes it’s been long and boring for everyone. I read somewhere a quote that stuck with me;

“We are all riding the same wave, but not all in the same boat”.

Everyone has experienced this pandemic differently, everyone has different circumstances.

So to blindly share social media posts about how people who are doing things differently are uneducated, is frankly ironic.

Education has nothing to do with it.

I couldn’t tell you in depth about my sons condition, or the effect covid would have on his already frail body.

But can I protect him? Absolutely.

It makes me sad to see what is happening, so soon after the be kind hashtag was trending.

Just be kind. Be nice. If someone does something you don’t understand or agree with, let them be.

You never know how your flippant comment or share could effect someone who is already struggling.

Xx

2 thoughts on “Incase you forgot, we are still in the middle of a pandemic

  1. Hi, you don’t know me but I have been reading your blog and felt compelled just to leave you a quick ‘hello’. I’m sorry I don’t know your name, or I would definitely use it. When you’re in hospital with Ellis, it’s ok to have wabbles or moments and meltdowns – I’m pretty sure the staff are used to it and I know they do care. You are a part of the package too, they need to look after you from time to time so that you’re able to keep going for Ellis. When you feel like that again please please go and find Ellis’s lovely physio, he’ll know what to say to help you in that moment. Take care. Love from the lovely physio’s mum (also known as Kim) x

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    1. Ah Kim, thank you for your lovely words. You must be very proud of Ross, he is incredible. He has supported us from the very beginning and manages to make Ellis smile even on his bad days! He is invaluable to that ward and will always remain a big part of our journey xx

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